We made it! Another Friday treatment down. Olive's 5th intrathecal treatment followed by two iv infusions. It was a planned overnight for observation because of one of her infusions needed to be followed by 12 hrs of iv(intravenous)hydration. We made a girly sleepover and busted out of there by 945am. Grandmom was waiting for us and Olive was in the salon chair by 10am.
We were having a great week. Olive had 3 wonderful visits from her teachers with full energy for each session. Wednesday we were at the bay area discovery outdoor museum for a quick test run out in the world before crowds arrived. As soon as the numbers picked up we were on our way home, or thought we were. The phone rang just as I buckled the girls in and Joan, one of our favorite nurses was on the phone. "How's Olive?! Great, I reply. "Good, but I think she needs to come in for blood count check". My heart sinks. Another bump, a sharp turn that cancer takes us.
Well the transition energy continued for a few days after Olive's arrival back home last Saturday. Everyone was excited and just wanting to jump back into some form of normal flow and energy but needed to slow the pace down so Olive could continue to get the rest she needs. For the record that girl fights the nap almost everyday because the Olive we all know and love is still burning inside. It usually takes her about 1.5 minutes to fall asleep once she is tucked in:)) Her naps are lasting about 2-3 hrs these days always welcomed after full mornings of play with her sister before she leaves to preschool, kid friendly yoga session(huge hit..thanks DI!), and plenty of school work in preparation for her teacher visits.
Okay so another bump in the road, another admission for fevers but our girl endured another treatment which brought her another step in the right direction. These unplanned admission are quite a shock to all of us, each time causing us to eject from our home, pack what we need and head out the door into another dark unknown. Luckily each time Olive has responded well to antibiotics and fevers have gone away within 4 days, counts tend to recover just enough so she can push through. This next 56 days of treatment is accumulative and we are starting to see her energy level, and appetite plummet with the only reassurance of being told "this is expected". We have full faith.
Monday night we found out that Ollie's red blood cell count was low so I was going to have to bring her into the hospital on Tuesday for a unit of blood. This meant performing the usual juggling act trying to figure out work, hospital trip, someone to watch Ollie when we finish up at the hospital. We were told if I brought her in at 7:30 in the morning it would be 2-3 hours then we were out of there.
Let in rain down all over me! Oh how us bay areas peeps have been praying to the rain gods to let us have it..finally we got it this week. I found myself with Olive and Quinn stuck in the house all day Wednesday with our pajamas on while it rained sideways outside. It was perfect. One of those days where baking muffins turned into a spontaneous yoga session(my new mission for me and my girls) which then turned into some messy play followed by a good old nap. We were stuck.
What an amazing weekend we had!! Olive has had a great couple days post treatment. We are learning what her limits are and making sure to always get in a lot of rest and fluids. We continue to give her intravenous chemo every Saturday, Sunday, and Monday at home and she will keep having her intense Fridays in the hospital . She also continues to take antibiotics every Saturday and Sunday am and pm which will continue 6mths after her treatment ends....3 years in total! I have no excuse to forget my vitamins anymore.
Today was the first day Ollie was her good old self. We woke up in the morning and she was full of energy. Quinn was very relaxed as usual, running around, wrecking things, screaming her frickin lungs out. Yet out of the screaming she had a great idea. "I wanna go to the zoo," she yelled. The zoo it was. Maybe we could even put Quinn in a cage.
The power of 24 hours is all this girl needs! Friday morning we were treated with sweetest gift of all, she doubled her blood counts!! This means she was able and ready for her scheduled treatments. Like I said before in earlier posts this girl is hot, and when she is legal we are going to vegas baby!!! After a week of fevers and fear we found ourselves once again enjoying the ride of cancer and luckily today was a whooooo raaaaa!