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Posts from the ‘Journal’ Category

Perseverance- Entry#34

Perseverance....What a beautiful strength to attain. Olive has been facing her battle everyday for 5 months weather she has wanted to or not. There have been days that challenges seemed too tough, fears too great, moments too REAL. Child's play (at times) have been put on hold and Olive has had to become a bigger kid than needed at such a young age. With each challenge Olive has persevered.

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SISTERS LOVE!- entry #33

-2Sisters are like ice cream; They cheer you up, and make you smile!!

This twosome is a they perfect double scoop of ice cream.  Quinn has risen to the call of true sisterhood at such a young age.  She loves her sister without judgement and adjusts her level of play just by reading Olive’s energy levels.  She is affectionate, protective and adds spice and fun every minute of Olive’s day. Quinny, we are so proud of you and the way you have rocked and rolled with our new reality.  I know times have been tough and so confusing but someday you will realize the importance of the role you had in keeping Olive strong and spirits soaring.

Like we always say.. sisters love.  Stay strong and spicey.  We love you.

A Weekend Home- Entry #32

Olive finished her first treatment Sunday night. We were able to get home by 10pm, shower her and tuck her into bed for what we hope will be 13 nights before she gets readmitted for 4 days of treatment. As the nurses were disconnecting her lines she flicked a rubber band across the room and announced"I'm breaking out of here"! Was the funniest spontaneous quote. My sis, Erin, the nurse, Olive and I were all rolling with laughter.

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Road Map #3 Kick Off! – Entry #31

We were officially fried after the last stent in the hospital. 13 nights and 14 day...almost sounds like a dream vacation, right? It was a long waiting game that was filled with the fear of what ifs and when our Ollie would rebound. We missed Passover and Easter together as a family. Quinn had caught a cold so we couldn't have any more visits from the sis. Our 9 year wedding anniversary came and went. It seemed like the numbers were never going to budge. We were stuck, she finally got to a level that was safe to go home and continue the waiting game. We left on a Tuesday plan to check labs Thursday but in all likely hood treatment would not resume until the following week.

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Cell Block 505 – #30

Ollie has been in room 505 in the hospital now for fifteen days now. I at least get to break out of here every other day or so but she has been cooped up. I can't believe how amazingly good she has been. I'm ready to tear my fucking hair out.

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And the world keeps spinning entry – #29

Choo Choo!!

We are just on this wild cancer train. We have had some amazing moments the past few weeks all padded by never ending cancer "pop ups". Treatment on Fridays have trucked along keeping her counts low but had remained fever free. This past Tuesday was our third week in a row needing a blood transfusion. After her Friday treatment the doctors always want to check counts come Tuesday due to the high likelyhood of her becoming anemic, neutropenic and or becoming thrombocytopenic. We have hit all three needing transfusion each Tuesday then followed by another full day for treatment on Friday. Our days off have been good, playing within our home or out back thanks to the amazing weather we've been having. Olive and Quinn are running wild together and getting along most of the time(thank god!) Frozen sound track and elaborate dress up is on permanent repeat in our house. Its pretty amazing to see the two of them sing some of the lyrics together....Olive knowing a bit more than her little sis;)

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A Glimpse of Our New Normal

We are still out of "the big house" and loving it. Fear for readmission and fever always hovering in our thought but we were able to enjoy another week at home. We finished up another round of intravenous chemo at home, Olive's blood counts did plummet by Tuesday so Grandmom and Pop Pop got to keep Ollie company on their last day together in the hospital. The transfusion took for over 5 hours but was spent playing games and having some final snuggle time before they had to say goodbye.

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weekend of family and gratitude! Entry #27

This week and weekend flew by! Olive had a wonderful week filled with very successful visits from her teachers. All three days she was exhausted before they visited but 1minute and and this girl was hooked for 2 hrs all 3 days!! Another tell tale sign of her strength and determination.

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Fairy Pixie Hairdo – entry #26

We made it! Another Friday treatment down. Olive's 5th intrathecal treatment followed by two iv infusions. It was a planned overnight for observation because of one of her infusions needed to be followed by 12 hrs of iv(intravenous)hydration. We made a girly sleepover and busted out of there by 945am. Grandmom was waiting for us and Olive was in the salon chair by 10am.

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Therapy Hold- Entry #25

We were having a great week. Olive had 3 wonderful visits from her teachers with full energy for each session. Wednesday we were at the bay area discovery outdoor museum for a quick test run out in the world before crowds arrived. As soon as the numbers picked up we were on our way home, or thought we were. The phone rang just as I buckled the girls in and Joan, one of our favorite nurses was on the phone. "How's Olive?! Great, I reply. "Good, but I think she needs to come in for blood count check". My heart sinks. Another bump, a sharp turn that cancer takes us.

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